"When you hear hoofbeats behind you, you don't expect to see a zebra". The color for rare diseases is zebra. If zebra can be a color. I guess most doctors do not look past the horses to see the lone zebra. The zebra with the rare disease.
Friday, August 24, 2012
The hubs
I just wanted to say a few things about my husband, Gary, as he has had to travel this journey with me. He is a champion, this page is going to sound gushy but that is the only way to explain him. He realizes I shouldn't be alone in this horrible disease, we are in it together. Even though I feel the pain I can tell he wishes a hundred times over that he could take the pain upon him, himself. Gary has talked me through so many melt downs that I cannot even count. He can tell by my face each and every day the pain level I am experiencing. He knows before I'm willing to admit that it is time to go lay down. He has gallantly taken on the housework and all the yard work like a trooper. I don't have to do anything unless I want to. I do love to tinker in the gardens, but will stop when the pain starts. He has an office job outside the home. He calls me often during the day to see if I'm ok. Even over the phone he can tell when I'm about to have a melt down and quietly talks me through it. Words cannot even express how much I love this guy. God broke the mold when he created him. Gary was raised right by a wonderful mother and father. Gary, I love you and I'm not sure what I did to get a guy like you. Only God can see our lives and he knew I would need someone strong and caring.
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