"When you hear hoofbeats behind you, you don't expect to see a zebra". The color for rare diseases is zebra. If zebra can be a color. I guess most doctors do not look past the horses to see the lone zebra. The zebra with the rare disease.

Tuesday, September 25, 2012

13 Days Post-Op

Barry and Gale came down this past weekend.  Gale wanted to photograph Jennifer and Justin in some maternity pictures.  She did a great job!  I even got plenty of rest while they were here.  We really enjoy their company.

How I'm feeling right now:  incision pain is all but gone.  Nerve pain is still there.  Can sit longer then I can stand.  Having issues with my stomach right now.  May need to work with GI doctor on this. It is getting kind of bad:(

4 comments:

  1. THere are no recent follow up posts to your surgery...what has been the long term results? Do you feel the surgery was a success? My wife is facing this very soon...
    I have a section on tarlov cysts and our new journey in the wilderness

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  2. How are you now? I am just diagnosed with a tarlov cyst.

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  3. I'm sorry I haven't kept up with this blog. I really need to. It's been a year since the surgery and it was well worth it. I have fewer bad days than good. I still take pain meds but instead of 8 a day it's down to 1 or 2 a day. My fentanyl patch helps also. Please let me know if you have questions. You can also contact me by phone: 816-980-9625. I will update the blog soon.

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